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Boy Who Suffers Rare Skin Condition Finally Lives His Dream Of Hugging A Husky

Oakley Orange used to always enjoy playing on his bike or trying to make people laugh with his cuddly toy husky dog Isabella.

Lorraine, his mother, said:

‘Everyone loved him,’

‘If he could put a smile on your face, he was happy.’

Just as Oakley was about to grow out of his childhood asthma his mother said ‘And then,’… ‘the world was turned upside down.’

In 2013 Oakley became very floppy and had no energy. Sadly, he got so weak he developed tremors down his right side.

Doctors Assumed it was the beginning of epilepsy and gave him an anticonvulsant drug called carbamazepine.

Suddenly a rash developed on his face and down his chest, causing his temperature shoot up. In the end his lips started peeling along with golf ball-sized blisters. The top layer of skin on his back started sliding off as soon as he got to hospital.

Doctors diagnosed him with Stevens-Johnson syndrome. It’s a horrible condition that causes the skin to burn from the inside from a toxic reaction to medication… it got very serious as his internal organs were starting to fail.

He lost so much skin that he was treated as a burns victim. Oakley spent five weeks in an induced coma on a life support machine followed by intensive care.

Isabella never left Oakley’s side at the hospital.

An amazing charity called Make-A-Wish Foundation UK arranges incredible experiences for very ill youngsters. Oakley was about to have an amazing wish granted.


Oakley was asked to choose his One True Wish

His mum, Lorraine said:

‘He wanted to see the northern lights and ride with real husky dogs’

‘And that’s what he did.’ Along with his whole family.

Lorraine added:

‘It was amazing – so peaceful in a beautiful hotel in Norway’

‘He still talks about it all the time – he can’t get over meeting real huskies!’

Like so many children helped by the charity Oakley’s illness was completely out of the blue. The whole family was affected by it.

Lorraine moved into a specialist burns unit in Broomfield Hospital in Chelmsford, Essex, with Oakley. This meant they had a 100-mile round trip from home in Kent.

Poor Oakley had lost all his hair, part of his toes and was covered in dressings.

Make-A-Wish Foundation did a truly beautiful thing for Oakley and his family.

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